June 2015

It’s been a long time since I’ve popped in here. We’ve just been going on with our lives. Day to day stuff.

BabyGirl is now 4 and just the same, only more. She makes me smile daily. Even on the days I don’t feel I have it in me. She has quite literally been my lifesaver here in recent months.

She just had her yearly clinic visit, which was supposed to have been back in February, but we were expecting Snowpocalypse 2 down here, so everything shut down and cancelled in anticipation. So, that go rescheduled for June. June!! But anyway…

No big changes in anything. Her scoliosis hasn’t worsened at all, kidney reflux still there, though no worse than before. She’s still running around, keeping up with everyone and everything. Still with that one foot turned inward.

She’s worn orthotics. There just doesn’t seem to be a big difference in when she wears them and when she doesn’t. There’s only a slight change *when* worn, obviously no correction going on.

The fact that there has been no big change in that, leads us to think it is time for a big change. We are looking at surgery in the fall. They will relax one tendon, move one to where it will be better served…something like that.. First she will undergo some pre-op casting in which they will begin moving her foot in the direction we want it to go and thus get a better feel for what actually needs done. Having her in a cast for those weeks prior to *and* after, is not high on my looked forward to events, naturally. But I *am* looking forward to this being done. I understand it’s not meant to be a ‘cure-all’ but I do think it is for the best and will improve things for this time period.

She will also begin a bowel program and we will begin working on a cathing schedule. I’ve been putting this off for a while now. I feel so lost. Where/how to start? But, I’m just going to have to jump in and get started with it. She’s 4. She can’t go to any pre-k programs or such wearing diapers. Not that I have plans to send her anywhere, I’m just saying…it’s time. So, wish us luck!

Also, her neurologist wants her to have another MRI when she comes back next year. It’s time to check in on everything.

And, there we are. See you in another year I suppose. In the fall for surgery if you’re lucky. 😉


One thought on “June 2015

  1. So happy to read an update!! Sounds like things are going well. Gage had foot/tendon release surgery in May, which I haven’t blogged about, and was in a cast for 6 weeks. It was no walk in the park, but he did fine. Also, let me know if you want any info on our bowel program. It has been the best thing ever for us!

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