UTI #1

Our first experience with UTI with LilBit.

A while back when we were all sick, I mean, the time before the time before this time (I feel we’ve been sick to one degree or another since December!), hub and I wondered if LilBit might just have a UTI. Her diapers had become quite stinky, in both regards 😉 She was fussy and had a fever that would come and go.  Present for a couple of days, spiking highest at night. She would sweat all night, nasty little thing to sleep next to! Then come morning it was gone and she was fine all day. That night it might spike back up, or it would hold off another full day then start in again. But, we were all sick.  We all had stuff going on. We all had fever at various points.

So we just monitored her, gave her cranberry juice, kept on going. The fever stopped on its own. The cold stopped.

Then last week we were at clinic and we were asked about UTIs, as is standard protocol given her condition. We mentioned this possibility, but said it was just that, a possibility, nothing confirmed.  Doc was ok with that. Didn’t beat us up over not taking her in or anything, he was fine with our course of action. Also as part of standard protocol, they run a test on the urine they retrieve while starting the urodynamics.

The office called Tuesday to say they confirmed a UTI and were calling in a prescription for Macrodantin. Alright, we can do that.

Or not.

Our insurance wouldn’t cover it. The pharmacist said the insurance wouldn’t cover it for her age, as it is a capsule, not necessarily ‘intended’ for her age. However, our doctor knows what he is doing and had given reasons and instructions we were aware of and comfortable with. The pharmacist said we would need doctor approval. That she would leave a note for the next day’s pharmacist to call and suggested I call the urologists office as well to make sure things are in motion. The pharmacist sounded like she didn’t think this was any big deal. Just make the call, it would get approved, pick up rx soon, done.

I get a call Wednesday with a change in prescription. The urologist’s nurse said the insurance wouldn’t cover because there wasn’t a generic.  ?? I have no idea what’s right. But, anyway, our urologist is writing a letter to BC/BS in regards to this. Meanwhile, LilBit will be taking something else. She will be taking a 7 day course to kick the UTI then will be on a low dose for prophylactic treatment.

She’s fine though. No fever, doesn’t act like anything is bothering her, so that’s good. Just a minor infection, par for the course with Spina Bifida I am learning. Now we just tend to it the best we can to keep everything in as good shape as we can. 🙂